Generic Harvoni Story 4

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Generic Harvoni Story 4

Bev and Phil’s Story
(by Bev)

Hepatitis  C Survivor’s Story

(This is way before generic Harvoni) I am a nurse originally from Los Angeles. I lost my husband in 1997 to Hep C/Cirrhosis/Hepatocellular Carcinoma. He was my whole life. My everything. We did the interferon no generic harvoni at the time. He did really well for around four years and I kept screaming to the doctors in this area of New Jersey and no one would listen to me. I kept telling them I felt it was turning into cancer and they absolutely wouldn’t listen. Ignorant and making much money on bloodwork, bloodwork, bloodwork.

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Doctors and Hep C Disagreement: Generic Harvoni

Finally January 1997, his bloodwork started going up just a little and I became so angry and insisted if they didn’t run the tests I wanted I would notify the news station in Philadelphia. They did the tests. One radiologist said it could be cancer and the G.I. here actually took it around, I guess until he found one that said no. (I found this out after the fact) THEN a month later his bloodwork went up some more, we could have purchased Harvoni for full price by now. If I knew that there was generic Harvoni in India, I would have rallied all my friends to do it.  I had not lived in this area long and I tried to get him to go back to Los Angeles with me because I know some really good guys out there but he didn’t want to go. He trusted me completely, and we went through so much together.

I had to cause such havoc and they finally sent us to Philly in June and we were told it was too late. He is now my guardian angel. I miss him so. He was the most wonderful guy in the whole world and he never complained. His physical appearance didn’t show the signs until July. He became jaundice, incredible ascites and edema and eventually hemmorage. I hate my profession for doing this. They do it to so many people. They act like they know everything at the cost of others lives and making big bucks with the drug companies using all their experimental drugs charging sky high top dollar money in their fifteen room mansions and double Mercedes and country clubs—-and I’m a NURSE!!!!!!!!!!!!!!!!!! These bad people should reduce the cost of generic Harvoni.

Nurse fights for Hep C: No Generic Harvoni

From the moment we found out he had Hep C, I MYSELF ran the tests without permission because no one else would. I almost lost my job because of it. In 1989 no one around here even knew what it was. I have studied everything and anything there is to know about Hep C from top to bottom. The worst thing is the lack of funding and it is even more prominent that AIDS! There are thousands of people out there that don’t even know they have it.

That’s why they call it “The Hidden Epidemic”. To me life is not worth living without my husband but the one thing that is keeping me going is I will get to the bottom of it. I have decided to devote the rest of my career to Hep C and making sure people get access to generic Harvoni, generic Epclusa, generic Sovaldi, generic Daklinza and anything that is too expensive to pay for the average patient.. I have decided to dedicate my continuing career to the study and research of this disease and I will continue to do so as long as I can keep my head above water . Financially I don’t care if I have to live in the street to continue this.

I’ll do it. I’ll go sit on the Presidents doorstep if I have to. Wake up America. It’s all about money damnit and that’s not what health care and taking care of people is all about. Do not let these people keep you away from getting generic Harvoni.  I wish I could have but I didn’t.  So use this as a big lesson for your future.

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