Valene’s Hepatitis C Survivor Story 9 by Valene
Hi my name is Valene. I was born with a lung disease, which required blood transfusion’s and now, I am living with hepatitis C, cirrhosis of the liver, and other medical problems which I have suffered through for the past fourteen years. I thought I was doing good until I went in for an A.D.D research. I had blood drawn and found out that I had high liver enzymes. My pediatrician said that I had mono and possibly hepatitis C. He referred me to a specialist, Doctor Rothbaum. I had a lot of tests done and I could not believe it when I found out that I had hepatitis C and cirrhosis of the liver. even though I had no idea what it really was, I knew I was dealing with something very serious and my life was going to be turned around.
Hep C Treatment with Peg-Interferon and Ribavirin
I started the combination treatment. it was so upsetting to find out that my parents and me would have to give me my shots at home. I had to take three shots a week and six pills a day for the past four 1/2 months. I got so strong that I started giving my shots to myself. The treatment was so hard on me that I had to stop schooling, and get home tutoring. I am dealing with side effects such as, flu like symptoms, aches, pain, crying, bruises, thinning of the blood, excessive tiredness, terrible itching acts, female problems, and being treated for depression. I am seeing three to four different doctors at this time for related problems. I was hoping under the will of God that it would cure me, but I found out that it was not working. I have stopped the treatment at this time and attending school again. I am in rare case of hepatitis C and cirrhosis of the liver. I live with the fear of knowing that the hepatitis C is still very active in me. There is no cure and I can’t do anything about it, so I pray day by day that there will be a cure for hepatitis C. I now wait and wonder if I am getting better or worse. I am so young to be going through all of this without any hepatitis C support groups for my age, but I do the best I can with God’s help. I want to thank my parents for being there and struggling through it with me. I love you Mom and Dad. Thank U
Follow up on Hep C Treatment Denial
I am now 18 years old and I had been waiting for the Gilead’s new hep C treatment and my insurance denied it. My mother who is hardcore about this got online and found Sunny Pharma and Soul of Healing, non profit that helps folks like us get hep c treatment and cost is very low. I was supposed to get Harvoni but that cost us $94,000. We could not afford it. My mom wanted to make sure that this was correct, she found out that generic Harvoni has ledipasvir sofosbuvir, which is exactly like Gilead’s Harvoni. She also found out that Gilead gave the license to Indian pharmaceutical companies to make it. So, its the same thing.
Follow up after Generic Harvoni:
I took generic Harvoni for my genotype 1 for 84 days. Its not bad, just one tablet a day. I got tested for hepatitis C 3 months after treatment, I was still cured. Hepatitis C virus antigens showed up but that’s normal even after you finished the meds. Thank God and my wonderful Mom and Dad. https://ama-ssn.org/melindas-hep-c-survivor-story-1/